Research Study

We are participating in an anecephaly research study being conducted by Duke University.  They are researching to see if they can find any biological or environmental factors that may contribute to babies getting anencephaly.  I am excited to be participating, because even though it won't help Annabelle it can potentially help babies in the future.  We have to give blood samples as well as cord blood at the time of Annabelle's birth and will be providing background medical information.  I only wish that this study was more known in the medical community.  They are looking for 10,000 cases and only have a few hundred.  I found out through a mom who had a baby with anen but would never have known otherwise.  It is actually a study for all Neural Tube Defects (NTD) including Spina Bifida... and there are thousands of cases out there.